RUSSIA-HEALTH-DISABLE

Daniil Maximov, 19, who lives with spinal muscular atrophy (SMA) talks with volunteer assistants in Moscow on November 16, 2021. - SMA is a rare genetic condition that impedes muscle development and movement. The illness is progressive, causing muscles to weaken and eventually become paralysed. In later stages, a patient may not be able to breathe or swallow on their own. Two treatments have been registered in Russia and continues for life and costs hundreds of thousands of dollars, an impossible sum on an average salary in Russia. (Photo by Dimitar DILKOFF / AFP) (Photo by DIMITAR DILKOFF/AFP via Getty Images)